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a background image of a hazel colored eye's iris with the large black pupil in focus

What is Retinitis Pigmentosa (RP) 

a ridgeline trail towards a mountain’s summit in the distance

Photo Description: The left photo shows a ridgeline trail towards a mountain’s summit in the distance.

picture simulating vision with Retinitis Pigmentosa showing a small portion of the original picture inside a circle. Part of the trail, part of the mountain, and a sliver of sky can be seen. Black surrounds the circle.

Photo Description: The right photo only shows a small portion of the original picture inside a circle. Part of the trail, part of the mountain, and a sliver of sky can be seen. Black surrounds the circle.

Retinitis Pigmentosa (RP) Explained:

Please note, I am not a doctor! The information I’m providing here is based off my own research, experience, and what I’ve been told from eye doctors.

Retinitis Pigmentosa (RP) refers to a group of eye diseases that affect the retina. Our retina is responsible for collecting light, which it converts into signals it sends to the brain for visual recognition. In other words, the retina creates a picture from the light It collects which the brain then identifies.

There are two primary cells that make up the retina, rods and cones. Rods are located away from the center of the retina, and are responsible for our peripheral, or side vision. Rods also help us see in dim light and at night. Cones are responsible for detecting color and fine detail. Over time, RP causes these cells to die, with the rods being affected first. Because of this, the initial symptoms of RP include loss of peripheral vision and difficulty seeing in low light.

Retinitis Pigmentosa is commonly diagnosed in childhood or adolescence but can also be diagnosed later in life. RP is an inherited disease, but it doesn’t require any family history. All RP requires is a genetic mutation. One of 50 genes needs to be affected in order for RP to occur.

Due to the vastness of genetic mutations of RP, each case is different. It effects individuals differently, with some losing their vision rapidly and others having stable vision for most of their life.

Do people with RP see black? No – this is something I always wondered too, when am I going to start seeing black? We see what we see. Our brain will try to fill in the rest based off what we can see and using other cues.​

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With Gratitude to the Land and Its First Peoples. Much of my work, learning, and recreation takes place on the lands now known as Wisconsin- lands shaped by the forced removal of Indigenous nations. I honor and extend deep gratitude to the 12 Native Nations who continue to care for these lands and waters today.

© 2025 by Katie Campbell. All rights reserved.

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